Thursday, July 5, 2012


Written in the air between DC and Seattle, posted a few days later

It’s not easy being the partner of someone with Lyme. Fifteen different times a day I have to stop to take pills and powdered medicine drinks and injections. My nap schedule and medical routine make day trips and weekend getaways impossible. And when my Lyme came back in February and March, I dropped into flash depressions, crying at suddenly feeling too sick to move around, or wailing how about how horrific and lonely life was. Just all part of my symptoms, but difficult to be around and not take personally.
Add to that scenario the Poet’s own emotional journey, about things from his past that are mostly separate from me and entirely separate from Lyme disease. Recently, this aspect of his life has been busting into the center of our relationship, duking it out with Lyme disease over which is the most bad-ass of all. I’d been trying to give him the support and attention he deserves, but Lyme is so emotionally draining that I didn’t have much psychological fortitude left to spread around. For his part, the Poet was doing all he could to support me, and while succeeding more than I was, not quite managing either.

So at the start of April I announced I was flying back to my parents’ for a few weeks. He resisted, said he’d rather have me there and that I deserved to have love and doting kindness from him. What you deserve and what your boyfriend can actually give you are not always the same, however. I could see he was burned out. He wanted romance and spontaneity and I was giving him big, sexy pill packs. I couldn’t give him the kind of spontaneity he wanted, so I interpreted his push for romance as a need for things to just not be about illness. It was time for me to lean on someone else for a while.

My original plan was to go for three weeks, but at the end of that time the Poet told me he missed me and loved me, and he appreciated my wisdom in making the decision to leave and give him the break he hadn’t realized he’d been starved for. I was so wise, in fact, that he thought I should extend my stay in DC. It was a bit of a surprise, but also a relief. I was feeling better being near my mom, who is good at doing logistical things to make being sick much easier. In DC, I could make things all about Lyme, which unfortunately was what I needed.

So we agreed, with lots of affection, to be there for each other and away from each other. We phoned and skyped and texted. The Poet told me about his personal revelations, I called him up about the medical decisions I was making and talked over the questions I had while I worked on my memoir. We had many, many conversations about our relationship, what has worked and what hasn’t. We got to a level of greater ease and greater honesty. We read the same books (“A General Theory of Love,” which I highly recommend, and “Autobiography of a Face,” also excellent.) The Poet sent me orchids, I sent him freeze-dried organic peas. It doesn’t get any more long-distance romantic than that.

And now, after three months, I am on the plane back to Seattle. David is already there. I am on the high dose of my Lyme meds, Samento and Banderol, and will do all I can to bend my medical schedule so that I can function as step-mom and girlfriend in the evenings, after their camp and work are over. When David heads back to his mom’s, the Poet and I are planning a week long trip to Whidbey Island, or maybe Columbia Gorge. Somewhere we can be together and relaxed. We’ve already decided which books to read together, this time it will be Jorge Luis Borges.


Sarah Lamando said...

My name is Sarah and I'm the blog administrator at
I'm writing both as and Lyme advocate and patient. After having experienced years of living with Late Stage Lyme Disease, I've simply come to the realization that there needs to be a healing place for people like me to go to and heal - on ALL levels, with 24 hour care and an individualized comprehensive treatment plan incorporating all worlds of medicine, counseling for caretakers, as well as a positive healing environment.
I've recently found an organization whose vision of this residential healing center parallels mine, and have created an Campaign for them to help get them started as a non-profit organization.
I already wrote about it, in my last post on A Slice of Lyme, called "The Art of War: According To a Pisces", but was hoping you'd be willing to help us spread the word about this cause by either posting something about it yourself, or adding my own post about it as a "guest blogger" on your site.
We have 37 days to reach our goal, so please let me know if you can help us in anyway as soon as is convenient.
Thanks so much for your time and consideration!
Here's the link to the campaign:

All my best,
Sarah Lamando

Naomi said...


I have already put up your link for Inanna House and just contributed. I've been longing for just such a place! I also know a lawyer who might be able to help you with the 501 (c)3 status. I can talk to her about volunteering her time/reducing her rates for you. Do you want me to ask her?



Sarah Lamando said...


Thank you so much for putting up the link to the campaign, and for your very generous contribution. I would be more than happy to send you the white sage (it's my favorite gift as well!!).

If, at the end of the campaign, I have enough left over, I will send you one from each of the four directions. However, please let me know which direction I should set aside for you in case they start going fast...North, South, East or West.

Thank you so much for your support!
All My Best,
Sarah Lamando

PS. Thank you for your kind offer to get a lawyer in touch with Inanna House to complete their 501(c)3...I will forward Mara Williams your message and have her contact you : )

Naomi said...

West sounds good to me :)

Sarah Lamando said...

West it is then : )

Please email me your mailing address to SarahLamando@InannaHouse.Org, so I now where to send it to!

Thanks again!
Sarah Lamando